Genomic dataset is one of the most diverse of its kind, integrated with other robust data
The National Institutes of Health’s (NIH) All of Us Research Program celebrated its five-year anniversary in May of 2023 with the recent expansion of the program’s dataset, which now includes nearly a quarter million whole genome sequences for broad research use. About 45% of the data was donated by people who self-identify with a racial or ethnic group that has been historically underrepresented in medical research. The data expansion provides registered researchers access to one of the world’s largest and most diverse dataset of its kind, paving the way to help advance health equity and uncover health care approaches better tailored to people’s genes, lifestyles, and environments.
Codman Square Health Center is an enrollment partner for All of Us in New England, and has played a critical role in this milestone, working to nurture relationships with diverse participants from throughout the region to ensure strong diversity in the dataset. To date, more than 32,700 participants have joined All of Us in New England. The genomic data is available to approved researchers with information from surveys, physical measurements and biosamples (blood, urine and/or saliva), electronic health records (EHRs), and wearable devices.
Launching in 2018, All of Us set out to build one of the largest, richest, most diverse health datasets of its kind. Thanks to the collective effort of provider organizations like Codman and community partners locally and across the country, the program has moved from promise to progress. In its first five years, All of Us has:
- Enrolled more than 425,000 core participants across the country, including over 7,700 from Boston Medical and Codman Square Health Centers.
- Connected over 5,000 researchers from different backgrounds and fields of study to All of Us data, resulting in more than 4,400 ongoing research projects.
- Shared personalized DNA results with participants, including genetic ancestry and trait results and information about DNA and health. All of Us is the first large research program to give DNA results back to participants.
The All of Us New England team prioritizes efforts to support the program’s philosophy of engaging participants as partners in health research. The New England team strives to provide bi-directional benefit in all manners of engagement with prospective and current participants, ensuring the return of valuable and useful information to those who join All of Us. One of the recent projects to be launched by All of Us New England is the new “Conversations with All of Us” podcast.
The idea to launch a podcast came as a result of direct feedback from the All of Us New England Community Advisory Panel to provide new ways for interested and current participants to get more deeply connected with the program. The podcast explores the evolving world of health research, and the role we can have in creating a healthier future for generations to come. Episodes will cover such topics as diversity in health research; current events and topics being discussed in health; local community partnerships; and research being conducted using All of Us data.
Join All of Us at the Codman Square Health Center
All Codman Square Health Center staff and patients are invited to join All of Us. Learn more about the program, how you can join as a participant or use the data for your own research by visiting the www.joinallofus/codman.
All of Us New England tables in the Codman lobby Thursdays from 9:00 am -5 00 pm. Team members are available for in-person or zoom presentations on the program. Contact Cheryl.McCloud Community Engagement Manager, if you are interested in an All of Us presentation.
- To learn more about All of Us and what to expect when you join as a participant, visit www.joinallofus.org/codman
- To register for access to All of Us data as an Codman Square Health Center-affiliated investigator, visit https://www.researchallofus.org/register/
- Visit the Research Hub to view aggregated data of interest, see current research programs using All of Us data and more!